Contact Us

The Foundation can be contacted in the following ways:

Written correspondence, including donations, should be sent to:

Cystinosis Foundation UK
Unit 81304
PO Box 15113
Birmingham
B2 2NJ

Email Us

Please email advice@cystinosis.org.uk or use the form below. All data submitted is processed in accordance with our privacy policy.

Social Media

Connect with others in the cystinosis community through our social media platforms.