The Foundation is trialing a “Once A Month Chat Line” to allow those affected by cystinosis to have a discussion with others touched by the condition. The call will be chaired by Jonathan Terry (charity founder and oldest known person in the UK with cystinosis).
The next call will be on Tuesday 6th March 2012 – the line is open 18:30-19:30.
To join the session call 0800 707 6903 (Free from most land-lines. Your mobile operator may charge for this call). The pass code is “32029437” then press “#”.
Please only call during the advertised period.