SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Luka Prepares for London Marathon

Luka Babiy, whose sister has cystinosis, is running the London Marathon this year despite never having previously ran a marathon. We are extremely grateful to Luka for choosing to raise money for us in this way. Good luck Luka, we hope the training is going well!

My name is Luka and I am a primary school teacher from London. This time last year I had never been running in my whole life and now I am running a marathon. It all started when my mum tried to persuade me that the two of us running the marathon together would be the best thing ever. I personally felt this was not a great idea, however we both went ahead and applied. Obviously, I got a place and she didn’t.

I thought long and hard about whether to accept, but decided that it was too good an opportunity to pass on. What better way to push myself to my limits and raise a huge amount of money for charity? My younger sister has Cystinosis and I know that she faces struggles everyday. If she can handle what she handles at the age of 7, then I can go for some runs and have a hard time for a few hours.

– Luka Babiy

If you’d like to sponsor Luka you can do so here – https://www.justgiving.com/LukaBabiy

Comments are closed.

Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday