SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

National Cystinosis Study Day at The Priory Rooms, Birmingham

NEW VENUE: The event will now be held at The Priory Rooms in Birmingham City Centre.

The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on Saturday, 26th January 2019, from 9:30am to 4:30pm.

The day will include talks from various health professionals, plus the chance to meet other people who have cystinosis. You do not need to be a patient of the QE to attend, the event is aimed at both adults and children who have cystinosis, and their families. Health professionals who are interested in learning more about cystinosis are also encouraged to attend.

It is completely free to attend and we definitely recommend that you do. If you are interested please contact Emily Cooper:  07810654864 / Emily.Cooper@uhb.nhs.uk.

Cystinosis Study Day 2019

Study Day 2019 Programme (Click to Download PDF)

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