UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is decided we will publish a new post with full details.
The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on Tuesday, 19th September 2017, from 9:30am to 4:30pm.
The day will include talks from various health professionals, plus the chance to meet other people who have cystinosis. You do not need to be a patient of the QE to attend, the event is aimed at both adults and children who have cystinosis, and their families. Health professionals who are interested in learning more about cystinosis are also encouraged to attend.
It is completely free to attend and we definitely recommend that you do. If you are interested please contact Michelle Lowe by emailing firstname.lastname@example.org or phone 07810654864.