Online ‘Cystinosis Symposium’ – Saturday, 10th October 2020

As part of Metabolic Support UK’s 2 day virtual conference we are co-hosting a 2 hour interactive ‘Cystinosis Symposium’ breakout session on Saturday, 10th October 2020, 2-4pm.

We’ll have the latest research updates, including the prodrug project that your donations have helped to fund. Plus, nephrologist Dr. David Game will be joining us, giving advice on coronavirus and answering your questions.

The event will take place on Zoom, please register using the link below. We look forward to meeting you virtually!

The full Metabolic Support UK conference takes place on 10th and 11th October. More details are available at the link above. The event is completely free and you can attend as much or little as you like, all from the comfort of your home.

Symposium Agenda

14:00 Welcome and Introduction – Pushpa Hossain, Metabolic Support UK

14:10 Overview of Cystinosis and Cystinosis Foundation UK – Alex Hutchison, CFUK Trustee

14:30 COVID-19 Advice for Parents of Children With Cystinosis – Dr Amrit Kaur, Consultant Paediatric Nephrologist

14:40 Updates on the Latest Research and Treatments for Cystinosis, Plus COVID-19 Advice for Adults With Cystinosis – Dr David Game, Consultant Nephrologist

15:00 The Discovery and Development of CF10 (Cysteamine Prodrug) – Professor Herbie Newell, University of Sunderland

15:15 Q&A and Group Discussion – Put your questions to Dr Game and Prof. Newell, virtually meet other attendees and suggest topics for discussion.

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