Rare Disease Day 2015

Rare Disease Day Logo28th February 2015 is the eighth international Rare Disease Day, which takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

You can help raise awareness of cystinosis and other rare diseases by helping to promote Rare Disease Day. You can follow the event on Twitter and like it on Facebook. Plus, the theme for this year is “Raise and join hands”, which you can take part in by uploading a picture of you and your friends raising hands to http://www.rarediseaseday.org/join-your-hands/.

For more information about Rare Disease Day visit http://www.rarediseaseday.org/ and watch the video below.

Comments are closed.

‘Great Big Glitter Ball’ – A Great Big Success! On 4th March 2017, 260 guests enjoyed a fabulous evening of entertainment at this year’s [...] Read more...
Cystinosis Education Day, 19th September 2017 A ‘Cystinosis Patient and Clinician Education Day’ is being held on Tuesday 19th [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday