SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Wendy Will Walk 16 Miles for Cystinosis Research

Cystinosis Foundation UK supporter, Wendy Exelby, who has a son with cystinosis, will be doing a 16.6. mile sponsored walk from her home in Old Goole through to Adlingfleet where she grew up. The walk will take place on 15th October and will be made challenging by the fact that she suffers from arthritis and osteoporosis. This won’t discourage Wendy from completing the walk, her inspiration comes from seeing her son Adam cope with cystinosis, and from wanting to help make a difference by raising vital funds for research into better treatments.

If you would like to sponsor Wendy please visit her JustGiving page, where she has currently raised over £300 – https://www.justgiving.com/wendy-exelby2.

Comments are closed.

CNE International Conference 2024 – We did it! Cystinosis Network Europe and Cystinosis Foundation UK were delighted to host the 2024 [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday