For a brighter future...
How Can I Help?
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
RT @7exie: Finally re-framed and hung my ‘Line Drawings’ postcards, which I bought as part of a @CystinosisUK fundraiser that Scott was par…
Mon May 21 11:05:13
How To Help
Family Day 2018
Fundraise For Us
May 31, 2013 | Posted by AlexH
Take part in a local charity event, or even organise your own!
Find out more…
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Raise More Through Gift Aid
Buy and Sell on Ebay
May 16, 2018
Distal Myopathy Study – Participants Needed
Dr. Florian Eichler, Associate Professor of Neurology at the Massachusetts General Hospital in [...]
May 18, 2018
Penkridge Runners Raise Over £700
We’d like to say a big thanks to Michelle Hull, Tashaa Preece, Paula Kimberley and all [...]
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla
The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...]
December 2, 2012
Newsletter – November 2012
Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...]
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