For a brighter future...
How Can I Help?
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
RT @rarediseaseuk: Meet Ellie and her twin sister Molly. Ellie has cystinosis, a #raredisease causing problems with kidneys and eyes, later…
Fri Aug 31 11:38:55
How To Help
Family Day 2018
Fundraise For Us
May 31, 2013 | Posted by AlexH
Take part in a local charity event, or even organise your own!
Find out more…
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May 22, 2018
We’re Looking for New Trustees – Can You Help?
Cystinosis Foundation UK is a charity that helps and supports people living with the rare [...]
August 23, 2018
Sponsored Walk for Ava
The family of Ava, who was diagnosed with cystinosis last December, have organised a sponsored [...]
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla
The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...]
December 2, 2012
Newsletter – November 2012
Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...]
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