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SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
New post: Jonathan Terry Has Sadly Passed Away https://t.co/P1mQD3kvpl
Thu May 09 22:17:45
How To Help
Fundraise For Us
May 31, 2013 | Posted by AlexH
Take part in a local charity event, or even organise your own!
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May 9, 2019
Jonathan Terry Has Sadly Passed Away
We are very sad to report that our founder, Jonathan Terry, died peacefully in his sleep on 9th [...]
February 24, 2019
10th March 2019 – Movie Music Magic Concert
On 10th March 2019 the Cinematic Syncopations Orchestra are hosting an afternoon of music from [...]
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla
The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...]
December 2, 2012
Newsletter – November 2012
Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...]
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