For a brighter future...
How Can I Help?
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
RT @rarediseaseday: TODAY is Rare Disease Day! How will you #ShowYourRare today in solidarity with rare disease patients all over the world…
Wed Feb 28 15:22:39
How To Help
Family Day 2018
Fundraise For Us
May 31, 2013 | Posted by AlexH
Take part in a local charity event, or even organise your own!
Find out more…
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October 26, 2017
Cystadrops® Now Available on Prescription
Orphan Europe’s Cystadrops® are now available on prescription in the UK. They are [...]
July 16, 2017
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham
UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...]
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla
The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...]
December 2, 2012
Newsletter – November 2012
Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...]
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