For a brighter future...
How Can I Help?
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
RT @UKKidney: 📣 New statement 📣 Care of adult CEV #kidney patients after easing of #COVID19 restrictions on 19th July https://t.co/zISgsV…
Wed Jul 21 21:59:58
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Fundraise For Us
May 31, 2013 | Posted by AlexH
Take part in a local charity event, or even organise your own!
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July 9, 2021
Cystadrops Now Available for Patients in England
Following advice from the Clinical Priorities Advisory Group (CPAG), NHS England has agreed to [...]
April 23, 2021
‘Cystinosis Connect’ Virtual Meet-up – 25th April 2021
Please join us for our next online meet-up. Your chance to virtually meet other patients and [...]
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla
The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...]
December 2, 2012
Newsletter – November 2012
Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...]
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