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Your Main Connection to Cystinosis * I have cystinosis I am a parent or carer of someone with cystinosis I have a family member or friend who has cystinosis I’m an employer or colleague of someone with cystinosis I am a health professional or student with an interest in cystinosis I work for a company or charity that has an interest in cystinosis None of the above / Prefer not to say

Type of Cystinosis * Nephropathic infantile cystinosis Nephropathic juvenile (late-onset) cystinosis Ocular (non-nephropathic) cystinosis Don’t know / Prefer not to say

Nephropathic infantile cystinosis is the most common type, accounting for an estimated 95% of cases. People who have late-onset cystinosis generally first develop symptoms in adolescence or early adulthood.

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