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What Is Cystinosis?

Cystine is an amino acid of which Cystinotics possess too much. Cystinosis occurs when the mechanism, which removes excess cystine, breaks down.
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Help With Treatment?

There are 13 treatment centres in the UK that can deal with Cystinosis.
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What is Cystinosis

Treatment Centres

Personal Stories

Cystinosis Worldwide

Helpful Links

Conferences

News

March 23, 2025

Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...

Events

November 17, 2024

Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

March 24, 2025

Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...

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