Conferences

9th International Cystinosis Congress to Take Place in Spain 5 October , 2015

Cystinosis Foundation (based in the USA) have announced that the next international cystinosis congress is to take place at the Barcelo Valencia Hotel in Valencia, Spain between the 30th June and 2nd July, 2016. Valencia is the third largest city in Spain and is situated on the east coast. The last of these events took […]

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Registration Now Open! – 8th International Cystinosis Conference 2 February , 2014

The registration website for the 8th International Cystinosis Conference (24th-26th July 2014) is now live. Visit this link to view the conference agenda and find out how to register – http://www.agoralive.com/CystinosisFoundation/Event1/ We look forward to seeing you there!

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Save the Date! – 8th International Cystinosis Conference 7 January , 2014

The 8th International Cystinosis conference is going ahead on the 24th to the 26th of July 2014 at the Renaissance Manchester City Centre Hotel. The conference programme and booking system will be online very soon. The full address of the hotel is: Renaissance Manchester City Centre Blackfriars Street Manchester M3 2EQ T: 0161 831 6011

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2014 International Conference 30 June , 2013

We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward to hosting a great event and seeing as many of you as possible there.

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Who Are Orphan Europe 27 December , 2011

Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for whom we were very grateful . This article explains who they are and what their involvement is with the Cystinosis community. Serving the Unmet Clinical Needs of patients with Rare Disorders Many of our members […]

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UK Cystinosis Conference 2011 13 October , 2011

On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself, researchers, medical practitioners, those with Cystinosis, their families, friends and many others. We were also very pleased to welcome our […]

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UK Conference Programme Now Available 5 August , 2011

The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View the programme. Details On The Manchester Conference Centre Please note that there are a few spaces left. So please CONTACT […]

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UK Conference Confirmation – September 24th 20 July , 2011

A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we look forward to seeing you there! Registrations are now formally closed, but we may be able to accommodate a few […]

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CRN Conference – USA – 14th July 2011 23 March , 2011

The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as a poster presentation and a motivational lecture by Cindy Abbott who last year summited Mount Everest, despite being diagnosed with […]

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Sunderland University Research Video 19 March , 2011

We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland University, with significant coverage of the research into cystinosis treatments being undertaken there. The video includes an interview with Roy […]

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‘Great Big Glitter Ball’ – A Great Big Success! On 4th March 2017, 260 guests enjoyed a fabulous evening of entertainment at this year’s [...] Read more...
Cystinosis Education Day, 19th September 2017 A ‘Cystinosis Patient and Clinician Education Day’ is being held on Tuesday 19th [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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