Other Useful Links

We have compiled a list of links to other relevant charities, organisations and sources of information regarding cystinosis.

Links to cystinosis specific charities can be found on our Cystinosis Worldwide page.

Other Related Charities

• Metabolic Support UK
  Patient organisation for inherited metabolic disorders.
• Rare Disease UK 
  National Alliance for rare diseases by Genetic Alliance UK.
• Kidney Care UK 
  Kidney patient support charity.
• Kidney Research UK 
  Funds research into kidney disease.

Other Links

• Wikipedia
  a definition of cystinosis.
• Orphanet
  Database of rare diseases, including information on cystinosis.
• Recordati Rare Diseases
  Pharmaceutical company producing medicines for treatment of cystinosis.
• Chiesi UK
  Pharmaceutical company producing medicines for treatment of cystinosis.
• Organ Donation
  Find out more about the NHS organ donation register.
• Rare Renal
  Information on cystinosis by The UK Kidney Association.