SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

$75,000 raised in 24 hour ski marathon

An absolutely incredible $75,000 was raised at the ski resort of Schweitzer Mountain, Sandpoint, Idaho, USA in honour of cystinotic and Sandpoint resident, 3-year-old Henry Sturgis.
The resort stayed open through the night last Friday, as participants skied for the full 24 hours, with Matt Gillis completing an astonishing and record-breaking 196 non-stop laps.

You can read more about this story at www.bonnercountydailybee.com.

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