SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

A barnstorming fundraiser!

There have been some incredible fundraising efforts for the Foundation over the past few years, but the Guild family from Ayrshire in Scotland really have raised the barn!

Emma and Stevie, whose daughter Erin has cystinosis, organised a barn dance to celebrate Emma’s 40th birthday and, in the process, raised an incredible amount for CFUK.

As well as a raffle and auction on the night, the local farming community shed the overalls for a highly amusing but very tasteful nude calendar. Also, a friend of Stevie’s shaved off his beard of 15 years, which must have been as difficult to part with as the farmers and their clothes!

280 guests attended the dance on the night, which also featured a barbecue, duck-fishing tombola and a ‘name on a tenner’ draw. A fantastic time was had by all, including Erin herself, who made a cameo appearance.

Overall, the event raised over £40,000 for CFUK, which has already been put to good use in furthering the research into pro-drugs at University of Sunderland.

Well done to all involved – a truly inspiring effort!

Erin

Erin

One of the calander entries.

One of the calander entries.

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