SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Birthday Celebrations raise £205

Juliet Scully and her father, Bob Bailey, celebrated their 60th and 85th birthdays on Saturday 22nd July. Juliet knows the grandparents of Cystinosis sufferer, Lena Forsyth, and having 5 healthy grandchildren of her own, wanted to use her birthday as an opportunity to raise money for the Cystinosis Foundation UK. At the event, held at Mizens Railway, Knaphill, Surrey, money was raised by selling quizzes and wristbands. There were also miniature train rides running and a BBQ. Many of Juliet and Bob’s friends and family made donations towards the Foundation. A total of £205.21 was raised over the day, with further donations being made via the Foundation’s website.


Birthday celebrations

Thank you to Juliet and Bob for aiding the Foundation – we hope you both had a great day and wish you all the best for the year ahead.

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