SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Carry your Donor Card!

Cystinosis sufferer, Sarah Laing, received a kidney transplant about a year ago. Until then, Sarah had to undergo dialysis 3 times a week after Cystinosis caused her kidneys to fail. Sidney the Kidney, as Sarah has nicknamed her new organ, has transformed Sarah’s life and it is all thanks to an anonymous person who was registered as an organ donor.

For the full story please visit: The Sunderland Echo.

Sarah’s family are supporting the campaign to encourage people to become registered organ donors.

Carrying an organ donor card and being registered with the national donor register enables you to potentially save another person’s life, when yours is past. The registration allows a quick decision to be made, as your wishes are clearly known, and avoids family and loved ones having to make the decision when they may not know what you intended to do.

You can find out more and, if you wish, register at the NHS Organ Donor Register website.

The issue of organ donor registration is not only a UK issue. A related story tells of Keri Hohl of Sioux City, Ioha, in the USA, who is still currently on a waiting list to receive a new kidney, after Cystinosis has left her with only 20-30% of her normal kidney function: see the Check Biotech website.

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