SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Cheque Presented to the Cystinosis Research Group, Robert Gordon University, Aberdeen

Earlier this year the Cystinosis Foundation UK presented a cheque for £2,542 to the Cystinosis Research Group at Robert Gordon University, Aberdeen. Dr Don Cairns explains how this money is being used:

"In July 2005, the Cystinosis Research Group at The Robert Gordon University (RGU) in Aberdeen received £2,542 from Cystinosis Foundation UK for the purchase of a vacuum oven. The group at RGU is designing novel treatments for cystinosis which are intended to be odourless, tasteless and orally active replacements for cysteamine. It is also our intention to prolong the duration of action of the medicine to allow once daily dosing. The work is going well and a number of novel compounds have already been synthesised. These compounds will now be evaluated for their activity in depleting cells of cystine. We are very grateful to CFUK for the gift of the oven which allows samples of drug to be dried under low pressure prior to spectroscopic analysis."

We thank Dr Cairns and all of those working with the Cystinosis Research Group for their work within the field of Cystinosis and wish them good luck in their future research.

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