CRN Conference – USA – 14th July 2011

Cystinosis Research Network Conference July 14thThe Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as a poster presentation and a motivational lecture by Cindy Abbott who last year summited Mount Everest, despite being diagnosed with a rare, life-threatening disease.

For more information, please the Conference Program at the Cystinosis Research Network website

Official press release:

CRN is pleased to announced that its 2011 Family Conference will be held July 14-16, 2011 at the Hotel Nikko in San Francisco, California. This will be CRN’s fifth family conference, with previous events held in Orlando, Florida (2003), Salt Lake City, Utah (2005), San Antonio, Texas (2007) and Atlanta, Georgia (2009).

Please plan to join us to reconnect and learn more about new research findings, receive updates from cystinosis organizations from around the world, meet and renew friendships with other families, have the opportunity to participate in research studies, and interact one on one with many of the world expert clinicians treating and researching cystinosis today.

More information on the Hotel Nikko can be found on their website at www.hotelnikkosf.com. Ideally located in the very heart of the city, Hotel Nikko is a short walk from fine shops, theaters and restaurants at Union Square. We are so fortunate to meet in San Francisco in 2011, a beautiful city which will provide a wonderful backdrop for our community to gather.

Registration materials will be available in early 2011 on the CRN website and will also be mailed to families. Our gracious host family for next year’s event will be Rich and Mary Jordan. They already have some remarkable plans in store for us, we thank them and the rest of the planning committee for committing to staging this wonderful event. See you all in San Francisco!

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