Hope, the quarterly newsletter for the organsation Patients’ Voice For Medical Advance, has featured two articles regarding Cystinosis written by Dr Roz Anderson, a researcher at the University of Sunderland, and Roy Forsyth, a member of the Cystinois Foundation UK committee and whose daughter has Cystinosis.
Patients’ Voice For Medical Advance is an organisation that supports medical research and is endorsed by various patrons including Esther Rantzen and Professor Stephen Hawkings. More information about this organisation can be found at: http://www.simr.org.uk/