Cystinosis Foundation UK to speak at Orphan Europe Conference

July 22, 2006 | Posted by AlexH

We are pleased to announce that Jonathan Terry, founder of Cystinosis Foundation UK, has been invited to speak at Orphan Europe’s International Meeting in October. Jonathan will be speaking for all generations with Cystinosis about the Positive Life of A Cystinosis Patient and how a positive approach helps all within the family.

More information about this event can be found at Orphan Europe.

Comments are closed.

« International Conference Report 2006

Charity Walk Raises £500 »

News

March 23, 2025

Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...

Events

November 17, 2024

Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

March 24, 2025

Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...

All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.

site:bonnyday