SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Cystinosis Foundation UK to speak at Orphan Europe Conference

We are pleased to announce that Jonathan Terry, founder of Cystinosis Foundation UK, has been invited to speak at Orphan Europe’s International Meeting in October. Jonathan will be speaking for all generations with Cystinosis about the Positive Life of A Cystinosis Patient and how a positive approach helps all within the family.

More information about this event can be found at Orphan Europe.

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