For a brighter future...
The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as their 2011 promotional video. This video gives a brief background on Cystinosis and details some of the research they are funding. As one of the largest fundraising organisations in the Cystinosis community, they are making some major progress into improving medication and also working towards a cure (although such a cure is still a long way off).
You can watch this video and others on the Cystinosis Research Foundation YouTube channel.
