Cystinosis Research Foundation Promotional Video 2011

The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as their 2011 promotional video. This video gives a brief background on Cystinosis and details some of the research they are funding. As one of the largest fundraising organisations in the Cystinosis community, they are making some major progress into improving medication and also working towards a cure (although such a cure is still a long way off).

You can watch this video and others on the Cystinosis Research Foundation YouTube channel.

Comments are closed.

We’re Looking for New Trustees – Can You Help? Cystinosis Foundation UK is a charity that helps and supports people living with the rare [...] Read more...
Mark’s Three Peak Challenge for CFUK CFUK supporter Mark Hewitt got in touch with us recently, to let us know about his latest [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday