Cystinosis Support Forum (USA)

The Cystinosis Foundation in the USA has for the last few years run a support forum for those connected and affected by Cystinosis. The forum is free to participate in and only requires that you register with the site and provide your email address.

It gives you the chance to talk to people with similiar backgrounds and find out what is happening around the world with respect to Cystinosis.

If you haven’t looked at this forum before, it’s worth taking a look: Cystinosis Fourm.

Comments are closed.

Novartis Gene Therapy Update We have received this message from Novartis regarding their gene therapy program for [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2023 Newsletter The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.