SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Dr. Jerry Schneider Has Passed Away

We are saddened to hear that Dr. Jerry Schneider sadly passed away on 28th December 2021.

Dr. Schneider devoted his entire career to cystinosis. He and his colleagues researched the condition when very little was known about it, leading to the development of the main medication used to treat cystinosis, without which life expectancy was much lower than it is today.

More recently he was Chair of the Scientific Review Board at Cystinosis Research Foundation in the US.

Dr. Schneider was a pillar of the cystinosis community, our thoughts are with all his family, friends and colleagues at this sad time.

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