SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Ending the Nightmare

The Sunderland Today newspaper has covered a story involving young children who are either awaiting or have received kidney transplants. This includes Amy Mellors, a Cystinosis sufferer, who underwent a kidney transplant operation that has radically changed the quality of her life for the better.

More information can be found on the Sunderland Today website.

Those waiting for an organ donation always greatly outnumber the donors available. It is possible to become a donor following death by registering on the NHS organ donor register. This can be done by calling 0845 60 60 400, or registering via the Organ Donor website.

And remember, whilst carrying an organ donor card can help, you need to be registered to ensure that your wishes can be followed.

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