We are looking for people in the UK to take part in a research study that aims to better understand the eye problems that people with cystinosis experience and how these eye problems are treated using eye drops. If you have cystinosis or you have a child who has cystinosis you are eligible to participate.
All you will have to do is answer some survey questions by phone. The call should last 30 – 45 minutes. The survey will be carried out by a research company and all answers will be completely anonymous.
For more information please email webmaster@cystinosis.org.uk.