SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Fashion Show Raises £3,350

On Wednesday 18th April a fashion show was held at the New Inn in Ellon, Aberdeenshire in aid of the Cystinosis Foundation UK.

The night, which featured local models wearing clothing by Skinners and a display of shoes by S&G Paterson, both of Ellon, was a complete sell out, with all 250 tickets being sold! Over £3,350 was raised on the night with all proceeds going to the Cystinosis Foundation UK to assist in our current campaign to raise further funding for on-going research projects.

The event was organised by Janet Sladdin, the grandmother of 6-year-old Lena Forsyth who suffers from Cystinosis. Mum, Vicky Forsyth, who also assisted with the event, stated "Research costs money, but if it works then it will be worth every penny".

Lena currently takes her medicines 3 times a day although it is hoped this may be reduced in future. Lena attends the local primary in Mintlaw and is a keen dancer having recently been involved with a dance show that also raised money towards Cystinosis research.

Janet Sladdin, along with other family, friends and local organisations, worked hard to make the night such an enjoyable success for many people and raise such a significant amount for the Foundation. We’d like to take this opportunity to thank Janet and all those involved for their efforts.

Fashion Show

Comments are closed.

Cystagon / Procysbi Survey Do you have experience of cystagon (mercaptamine), procysbi (cysteamine bitartrate), or both? [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday