For a brighter future...
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Finding Hope for Holt

February 19, 2008 | Posted by AlexH

2-year-old Holt Grier suffers from Cystinosis. His parents have started Hope For Holt, an organisation working with the Cystinosis Foundation USA, to raise awareness of Cystinosis and money for research.

Recently their story was highlighted on wbtv.com – the webcast can be seen at http://www.wbtv.com.

Comments are closed.

«
»
News
March 23, 2025
Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...
Events
November 17, 2024
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Stories
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletters
March 24, 2025
Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday