Fore A Cure

An extraordinary $225,000 (£150,000) was raised by a fundraising golf tournament held in California, USA, last month.

On 10th November, 144 golfers gathered at the Coto de Caza Golf & Racquet Club in Orange County for the second annual Fore A Cure, Natalie’s Wish benefit, raising money for the Cystinosis Research Foundation through auctions, donations and individual and corporate sponsorships.

The Cystinosis Research Foundation, a California-based charity, has funded 45 studies and fellowships across the globe in the last five years, totalling more than $6.9m (£4.6m) in total.

The event was also aiming to educate and increase awareness about the rare metabolic disorder.

Such a large sum is hugely welcome for the funding of research into cystinosis, its treatment and cure. Due to the rarity of the disease (just 150 in the UK and Eire, and 2,000 estimated worldwide), research funds are limited.

For more information about the Fore A Cure event, or to find out more about the Cystinosis Research Foundation, visit Natalie’s Wish.

Comments are closed.

Jonathan Terry Has Sadly Passed Away We are very sad to report that our founder, Jonathan Terry, died peacefully in his sleep on 9th [...] Read more...
10th March 2019 – Movie Music Magic Concert On 10th March 2019 the Cinematic Syncopations Orchestra are hosting an afternoon of music from [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.