Fourth Cystinosis Research Network Family Conference

The Fourth Cystinosis Research Network Family Conference was held July 16-18, 2009 at the Marriott Evergreen Conference Resort in Stone Mountain, Georgia. This year’s theme was “Above and Beyond” and there is no doubt that we as a community did just that! Nearly 300 people from 25 states and 10 countries living with or involved in the care or research of cystinosis gathered to enjoy this unique opportunity to connect and share their experience and expertise. More than 60 families and 50 clinicians, researchers and professionals were in attendance during the three day conference.

One of the highlights of the conference was the recognition of Dr. William Gahl and Dr. Jess Thoene for their outstanding achievements and contributions to the cystinosis community. They received the first annual “Above and Beyond” award for their unparalled dedication to both CRN and the cystinosis community.

The CRN Scientific Review Board also met in conjunction with the meeting to review this year’s submitted grant proposals. Look for an announcement in the coming weeks regarding new research studies to be funded as a result of this year’s Call for Research Proposals.

Many of the presentations, poster session abstracts, and photos from the conference will be available on the CRN website. Full coverage of the conference will also be available in the Fall/Winter CRN newsletter, The Cystinosis Advocate, which will be published in October.

Christy Greeley
President and Executive Director
Cystinosis Research Network

For more information please see the Cystinosis Research Network website.