SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Hearts For Holt

30 friends of the Grier family, in the USA, organised a fundraising evening in honour of Holt Grier who suffers from Cystinosis. An unbelievable $75,000 was raised during the night through auctions of items gifted by friends of the Griers!

To read more about this story see the Grier’s blog at Grier Town Blog Spot.

Comments are closed.

A First for CFUK – Cystinosis Symposium 2020 Report On Saturday 10th Oct 2020 Cystinosis Foundation UK ran their first online Cystinosis Symposium, [...] Read more...
‘Cystinosis Connect’ Virtual Meet-up – 23rd January 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday