SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

If You Ever Need Inspiration

We all have our story. And the daily pressures of living with Cystinosis are not easy. However, below are two stories, one from Anne Maire O’Dowd (Cystinosis Ireland) and the other from Angela McCoy in Texas in the USA, describing their experiences of coping with Cystinosis. We hope you will draw inspiration from their stories.

We are in this for life, Irish Times

My Son, My Angel, My Hero: A Story of Hope in the Face of Adversity, DivineCaroline.com

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