If You Ever Need Inspiration

We all have our story. And the daily pressures of living with Cystinosis are not easy. However, below are two stories, one from Anne Maire O’Dowd (Cystinosis Ireland) and the other from Angela McCoy in Texas in the USA, describing their experiences of coping with Cystinosis. We hope you will draw inspiration from their stories.

We are in this for life, Irish Times

My Son, My Angel, My Hero: A Story of Hope in the Face of Adversity, DivineCaroline.com

Comments are closed.

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday