It’s now only two and half months until the bi-annual International Cystinosis Conference in Dublin. The conference is a chance for both families and professionals to meet, chat, learn and share experiences, and a full programme of events is now available on the Cystinosis Foundation Ireland website. This programme includes specific sessions aimed at children, families and medical professionals, as well as more general sessions for all. And there will be buffet lunch on both days of the conference to give us the chance to get to know each other more informally too.
The conference is being staged at the Hilton Hotel, just south of the centre of Dublin, and conference organisers are arranging a discount for attendees of the conference that stay at the hotel. However, please contact the Cystinosis Foundation Ireland for confirmation of this discount.
A fee of 30 Euros is required to attend the conference, payable on registration on day one, but please ensure you complete the registration form on the Cystinosis Foundation Ireland website beforehand. We are expecting people from all over the world and from all walks of life to attend. There will be representatives from the Cystinosis Foundation UK attending, including Jonathan Terry, the founder of the UK Foundation, as well as Matt Blackham, who looks after the UK Foundation’s website and who is intending to report on the conference. However, we have been in touch with people as far afield as Australia who will be making the trip to Ireland to be with us!!
The International Cystinosis Conference is held only every 2 years, so it is a rare opportunity for us to all meet, share and learn, so we hope you will consider attending if possible. We hope to see you there!!!