SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Jessica Jondle Publishes Book About Life With Cystinosis

Jessica Jondle, 30, a teacher from California, USA, has written a book about her experiences of living with cystinosis. Diagnosed with cystinosis in 1983, when doctors gave her 10 years to live, ‘Roller skating with Rickets’ is an uplifting and true tale of Jessica’s life-long journey with the disease. Jessica is donating all proceeds from the sale of the book to cystinosis research.

To order your copy please visit: http://www.lulu.com/product/paperback/roller-skating-with-rickets/18866564

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