SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Jonathan Terry Awarded MBE

Jonathan TerryWe are incredibly pleased to report that our founder, Jonathan Terry, has been awarded an MBE in the Queen’s 2019 New Year’s Honours List.

The honour is given to people who have made an outstanding contribution to their communities.

Jonathan founded Cystinosis Foundation UK in 1998. He is the oldest surviving cystinosis patient in Europe.

Charity status was achieved in March 1999 and a launch conference was held that April in Leeds. For many years Jonathan was the charity’s central organiser, he dealt with hundreds of enquiries from patients and families.

The trustee group would like to congratulate Jonathan on this fantastic, well deserved achievement.

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