Jonathan Terry Awarded MBE

Jonathan TerryWe are incredibly pleased to report that our founder, Jonathan Terry, has been awarded an MBE in the Queen’s 2019 New Year’s Honours List.

The honour is given to people who have made an outstanding contribution to their communities.

Jonathan founded Cystinosis Foundation UK in 1998. He is the oldest surviving cystinosis patient in Europe.

Charity status was achieved in March 1999 and a launch conference was held that April in Leeds. For many years Jonathan was the charity’s central organiser, he dealt with hundreds of enquiries from patients and families.

The trustee group would like to congratulate Jonathan on this fantastic, well deserved achievement.

Comments are closed.

QUALIFY-US Study Participants are needed for the testing of a newly developed questionnaire to measure the [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2023 Newsletter The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.