Jonathan Terry Has Sadly Passed Away

We are very sad to report that our founder, Jonathan Terry, died peacefully in his sleep on 9th May 2019.

Jonathan founded Cystinosis Foundation UK in 1998. For many years he was the charity’s central organiser, dealing with hundreds of enquiries from patients and their families. He was the oldest patient in Europe and was awarded an MBE in the Queen’s 2019 New Year’s Honours List, in recognition of his achievements.

Jonathan will be very much missed by the cystinosis community. Our thoughts are with his family at this sad time. Rest in peace.

Comments are closed.

Jonathan Terry Has Sadly Passed Away We are very sad to report that our founder, Jonathan Terry, died peacefully in his sleep on 9th [...] Read more...
10th March 2019 – Movie Music Magic Concert On 10th March 2019 the Cinematic Syncopations Orchestra are hosting an afternoon of music from [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday