SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Meet The Team

The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all have different backgrounds, experiences and skills that help them to steer the Foundation as a
collective in order to fulfill our aims. All have different connections with Cystinosis. And all give their time freely.

In conjunction with the board, the charity’s founder, Jonathan Terry, works on a voluntary basis taking care of the day-to-day running of the charity.

We are pleased to announce that we have updated the site with a profile of each trustee and hope that it allows you to understand a little more about us; what we do, who we are and why we do what we do.

The profiles are available on our Board Of Trustees page.

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