Meet The Team

The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all have different backgrounds, experiences and skills that help them to steer the Foundation as a
collective in order to fulfill our aims. All have different connections with Cystinosis. And all give their time freely.

In conjunction with the board, the charity’s founder, Jonathan Terry, works on a voluntary basis taking care of the day-to-day running of the charity.

We are pleased to announce that we have updated the site with a profile of each trustee and hope that it allows you to understand a little more about us; what we do, who we are and why we do what we do.

The profiles are available on our Board Of Trustees page.

Comments are closed.

Distal Myopathy Study – Participants Needed Dr. Florian Eichler, Associate Professor of Neurology at the Massachusetts General Hospital in [...] Read more...
Penkridge Runners Raise Over £700 We’d like to say a big thanks to Michelle Hull, Tashaa Preece, Paula Kimberley and all [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday