Meet The Team

The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all have different backgrounds, experiences and skills that help them to steer the Foundation as a collective in order to fulfill our aims. All have different connections with Cystinosis. And all give their time freely.

Earlier in 2009, Paul Doyle retired from his position as treasurer. Former chairperson Gareth Jackson assumed the role of treasurer from Paul, with committee member Roy Forsyth replacing Gareth as chairperson. In addition, two members joined the board of trustees, David Benford whose daughter has Cystinosis and Neil Sugden who himself has Cystinosis. You can read all about these individuals at our updated Board Of Trustees page.

Comments are closed.

Cystadrops® Now Available on Prescription Orphan Europe’s Cystadrops® are now available on prescription in the UK. They are [...] Read more...
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday