National Designation Survey – Your Chance to Have a Say

We need your feedback! A new model of care for cystinosis has been proposed as part of the national designation application to NHS England. Your feedback is vital, the model of care needs to suit the needs of cystinosis patients. We have created an online survey you can fill in to give your opinion – https://www.quicksurveys.com/s/r6C5Fi

Please note, the survey is open to anyone living in the UK – the initial application is to NHS England but it is hoped that Scotland, Wales and Northern Ireland could adopt similar models. For those of you living outside the UK, we are very grateful for your interest but we do need to only accept responses from the UK for the time being.

Comments are closed.

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday