SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Newly crowned Miss USA supports Cystinosis awareness

In August, Ashley Kazian was crowned this year’s Miss America. And whilst this is a fantastic achievement for Ashley, it is also a major event for the Cystinosis Foundation in the USA, as she is a strong supporter of the Foundation and intends to use her new fame to promote awareness of Cystinosis.

Ashley is a close friend of the McGinnis family, whose daughter Laura suffers from Cystinosis, and as Ashley progressed through each round of the competition, she has been promoting awareness of Cystinosis.

The full article can be seen at the Cystinosis Foundation USA website.

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