Newsletters

Issue 21 of the Foundation newsletter has recently been finalised and is available to download at the link below. Thank you to everyone who has contributed to the content. Newsletter November 2012 The paper version of the newsletter is in the process of being distributed to Foundation members. If you do not receive your copy […]

Issue 20 (November 2011) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website (see below). We would like to thank everyone who has contributed to its content. If you have not received your […]

The Cystinosis Foundation USA has released their July 2011 newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.

The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.

Issue 19 (November 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website (see below). This release is a bumper issue, including a report on the September International Conference in Italy, which we […]

The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of children, young people and families affected by metabolic disease and with whom the Cystinosis Foundation has a close relationship. For […]

Issue 18 (April 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download direct from the site (requires Adobe Acrobat Reader). Thank you to everyone who has contributed to its content, with special thanks to our new production […]

Issue 17 (September 2009) of our newsletter has recently been released and includes stories covering fund raising, research, experiences of dealing with Cystinosis and a retrospective of the first 10 years of the Foundation. Thank you to everyone who has contributed to its content! If you have not received your newsletter, or would like to […]

Issue 16 (January 2009) of our newsletter has recently been released and all members should now have their copy. And a bumper edition it is too, with stories on research, medical notes and experiences of dealing with Cystinosis. Thank you to everyone who has contributed to its content! If you have not received your newsletter, […]

Issue 15 (September 2008) of our newsletter has recently been released and all members should now have their copy. Thank you to everyone who has contributed to its content! If you have not received your newsletter, or would like to become a member and receive one, please contact us or you can choose to download […]

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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