SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Olympic Task For Family

Judo stars Daniel Kelly and Maria Pekli were preparing to represent Australia at the Olympics, but their plans suffered a set back when their two-year-old son, Erik, was diagnosed with Cystinosis. However, with support from family and friends, the couple look set to travel to Beijing in the summer to represent their country, in what will be Daniel’s 3rd and Maria’s 5th Olympics! You can read the full story at:

We send our best wishes to them both at the Olympics and their son Erik too!

Comments are closed.

Cystagon / Procysbi Survey Do you have experience of cystagon (mercaptamine), procysbi (cysteamine bitartrate), or both? [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday