SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Organ Donation – A Family’s Perspective

Facing the prospect of a major organ transplant is a big enough ordeal in itself. Knowing that the organ was donated from a person who died creates a whole new host of challenges to overcome. Do you want to know from whom the organ was donated? How do you feel about this person? How will the donor’s family feel about you, knowing on the one hand someone’s life has potentially been saved, whilst a loved one is lost? Would you want to meet them, or simply not know?

Read about the experiences of two families and their individual approaches to these issues.

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