SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Princess For A Day

During August of this year, 7-year-old Avneet Seehra became a princess for a day, thanks to the “Make a Wish Foundation”. Avneet, who suffers from Cystinosis, was given a make over, taken to a local gallery by limousine, treated to tea and finally had a ride in a carriage drawn by horses, Bumble and Spot, as people nearby cheered her on.

A few weeks previous, Avneet’s older brother, Eeshar who is 10 years old and also suffers from Cystinosis, had his wish come true as he directed a music video, thanks to the “Make a Wish Foundation”. During Avneet’s day as a princess, Eeshar was able to use his new director skills to film his sister’s special day.

For more information on this story, see thisisderbyshire.co.uk

To learn more about the Make A Wish Foundation, which also recently granted their 5000th wish, visit their website www.make-a-wish.org.uk.

Comments are closed.

Novartis Gene Therapy Update We have received this message from Novartis regarding their gene therapy program for [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2023 Newsletter The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday