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Research Appeal

We are happy to announce the results of our latest collaborative research, “The impact of different cysteamine formulations on the lives of people living with cystinosis.” This research announces important findings from a survey conducted in collaboration with Metabolic Support UK and Kidney Research UK, aiming to better understand the day-to-day experiences of those living […]

A new research paper has been published as a result of the work undertaken at the University of Sunderland to develop a prodrug for the treatment of cystinosis. Cystinosis Foundation UK has been able to support the prodrug project thanks to generous donations and fundraising efforts by our supporters. The paper explains that “successful uptake […]

Sunderland University has given us an update on their research into the use of prodrugs as a treatment for cystinosis: Summary of Cystinosis Research at the University of Sunderland – Winter/Spring 2014 Research at the University of Sunderland focuses on using prodrugs to improve the treatment for cystinosis. A prodrug is an inactive form of […]

We set ourselves the target of raising £300,000 to help support research for the improvement of cystinosis treatments. By November 2011 we had raised £265,208. Now, in February 2012, we are pleased to announced the total raised has now reached £298,112!! So many people have helped us reach this magnificent total. From those involved in […]

Our thanks go to Professor Roz Anderson, at Sunderland University, for providing us with a recent update on her team’s research into prodrugs that are hoped to deliver improved treatments for cystinosis. This is a project for which the Cystinosis Foundation UK is providing funding. Prodrugs Research at University of Sunderland, Prof Roz Anderson, January […]

 
 
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