SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Sisters raise awareness in national newspapers

Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail newspapers. Mum, Jessica Kemp, 25, was eight months pregnant with Poppy-Mae when Emily was finally diagnosed with cystinosis after months of investigations and tests. The articles have led to further media interest that could help to raise more awareness of the condition, including a magazine article, and interest from both This Morning and Channel 5. Read the full articles below.

http://www.dailymail.co.uk/health/article-2128112/Sisters-face-kidney-failure-age-10-1-3-5m-disorder-Cystinosis-causes-rock-bodies.html

http://www.thesun.co.uk/sol/homepage/features/4250403/Sisters-bodies-are-turning-to-crystal.html

 

 

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