SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Sweet Success

Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends and family’s responses.

In April they were lucky to receive a large donation of sweets which they set about sorting into bags and then sold at various events. All members of the family were also roped into selling the sweet to their friends and workmates! This raised a further £611.47, bringing the current total to £1555.47!

Riley’s Uncle Steve is currently planning a charity car rally later this year – look out for further information.

 

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