SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Team of Five to Take on Tough Mudder Challenge

Four people wearing white Cystinosis Foundation UK t-shirts.
Above from left to right: Lewis Coates, Oliver de Rosenwerth, Michael Coates, Daisy Coates

This Sunday, 5th September a team of 5 fundraisers is taking on the ‘Tough Mudder‘, which is described as ‘a series of obstacle and mud runs that will push your physical and mental limits’. And, as the name suggests, it is known to be a very muddy challenge.

Their JustGiving page was set up by team captain Sarah, whose friend is Mum to 6-year-old Ellie, who has cystinosis. Sarah knows how challenging life can be for Ellie and her family, this inspired her to want to raise some money to help pay for research into new treatments.

Sarah’s husband Michael, step-daughter Daisy, step-son Lewis, and son Oliver will all be taking part in the event on Sunday.

We’d like to say thank you and wish them good luck! We’ve sent them some t-shirts to wear to complete the course, as you can see in the picture above. We don’t expect them to stay white for long!

Comments are closed.

QUALIFY-US Study Participants are needed for the testing of a newly developed questionnaire to measure the [...] Read more...
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Summer 2023 Newsletter The Summer 2023 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday