SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

The Forsyth Story On Television

Lena Forsyth was diagnosed with Cystinosis at 7 months old, changing the life of the Forsyth family of Mintlaw, near Peterhead, forever. However, the whole family rose to the challenge of dealing with Cystinosis and began fundraising to help improve treatments. Lena’s father, Roy, joined the Cystinosis Foundation UK committee and became the Foundation’s chairperson at the beginning of 2009.

More recently, the family were invited by journalists from television and national press to share their story. Some of these videos and articles are available on-line and you can view and read more at:

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