For a brighter future...
SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Walk for Holt

October 1, 2007 | Posted by AlexH

What started as a neighbour asking if they could do a sponsored walk for recently diagnosed Cystinosis sufferer Holt Grier, soon became 150 people raising over $12,000! For the full story see:
griertown.blogspot.com.

Comments are closed.

«
»
News
July 26, 2024
Cystagon / Procysbi Survey Do you have experience of cystagon (mercaptamine), procysbi (cysteamine bitartrate), or both? [...] Read more...
Events
February 19, 2024
CNE International Conference 2024 Cystinosis Network Europe and Cystinosis Foundation UK are delighted to announce the 2024 [...] Read more...
Stories
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletters
July 26, 2024
Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday